April 30, 2004

  • Rest - Rested  - Resting - With ADD


    I slept last night.  Deeply and long as I could.  Things look much better today (although, I still love that cummings poem ... )  Rest is a prized commodity for me.  I never needed so much rest when I was younger, and even now, when things get really cooking in my life, I'm known to spend many early morning hours awake and staring into the darkness while I think through my life.  My kids have inherited my sleeplessness.  I've learned that this tendency to sleep little is a normal feature of Attention Deficit Disorder. 


    My day starts early every day.  My kids rarely sleep in past 5:30.  I have trained them to at least stay in their room until they hear me up, but they aren't always quiet about it.  We leave the house in the morning between 7:30 and 7:45.  (7:30 allows us to be leisurely about it, 7:45 will get us there on time and is the point of "I don't care if you can't find your homework we have to go NOW.")  Between 5:30 and 7:30 I have time to do three loads of laundry, vacuum a room or two and usually clean the bathroom.  I also make breakfast for the kids most mornings although lately they've been telling me they want to make their own.  


    After I drop the kids at school, I clean the kitchen, check my email, and make my list of things I have to do that day.  I work off the list because I have to.  If I don't have a list, things just don't get done.  Let me tell you about my Monday morning.  Not because it's so unusual, but because its very typical of my life.  Tucker had a Dentist appointment at 7:30.  That's 7:30 my time, the Dentist's office is located in a different time zone so the appointment card said 8:30.  This was the third week in a row for him to have an appointment at that time, this is the first week that we've actually made it on time because I kept forgetting about the time zone thing. 


    After the Dentist, I had to stop in at Walmart for trashbags, fruit, bread, and gas for the car.  I forgot the trashbags even though they were clearly written on my list.  I remembered to buy a Walmart card so I could get the 3 cent discount.  I forgot to stop at the gas pump to actually get the gas.  I didn't remember it again until we were 20 miles away and Michael said, "Mom, you should put gas in your car today you're about out."


    One thing about having ADD, we all three have things that we just can't remember, and we all three have areas where we are hyper organized.  Michael is great at knowing what we need, I know what we have, and Tucker knows what he wants. 


    I just went through the process of meeting with school personnel to plan Individual Education Plans for my kids for next year.  The school people know we are moving, but this way there is a record of the testing, the interventions and the progress that's been made I can take with me to the next school.  I got a lot of positive feedback on both my kids.  They are apparently well-liked by their teachers and peers.  Tucker has been using that to his advantage, playing "baby" and getting the other kids to do chores for him.  Don't tell me that kid can't figure out social situations ...


    I've also learned that ADD is an inherited condition.  Like many adults of my generation I first heard that I might have ADD when the doctor suggested testing for my kids.  Beginning to understand that ADD is a reason not an excuse was a major point of growth for me.  But even when I first heard it, I didn't realize that there were specific means of compensation that would help me now.  I thought of it in terms of a disorder that primarily concerns children and school performance.     


    It's amazing the difference between the experience my kids are having and the one I remember from being in elementary school.  As I was packing things earlier this week, I found the box that contains the report cards from Smith Elementary which I attended for five excruciating years.  Every card was filled with remarks from the teachers about how I was a discipline problem.  I was impulsive, lacked self-control, refused to participate, and/or unmotivated.  Time after time the card said, "Terri has such potential if she would just apply herself."  Nowadays, any school person seeing that kind of report would immediately say "ADD" and there would be options and interventions to help.  Back then, I was labeled a discipline problem.  Reading through those cards brought back memories of being punished at home for those reports and my father lecturing to me about his disappointment in my inability to "behave" myself.  I grew up thinking that my problem was a character problem, that I was a bad person.


    But I also remember what it felt like in those classrooms.  Material that was so boring that I literally ached to be doing something, anything else.  And more than once when I was trying so hard to be good, I would fall asleep.  (Sleeping in class also showed up on the report cards.)  When something engaged me, I would move like lightning through the material, but if I was bored, trying to focus on it was like being dragged over rough gravel.  Halfway through my third grade year, reading "clicked" for me.  My Mom bought me a Trixie Belden book and I was hooked.  Not only hooked, but I found my salvation.  From that point on I was never without something to read.  I got a library card and pestered my Mom to take me every week.  I would check out stacks of books at a time.  I would read in class.  The teachers didn't always appreciate my habit, but what could they say?  Whenever they called on me in class, I knew the answer.  So I was left alone.  My friend, Ruby - and you know I REALLY need to call her - says that the thing she remembers about me from our school days together is that I carried three times as many books as anyone else.  By the time I was in Junior High school, I was reading Shakespeare and Aristotle because that was the only way I could make it through geography class without crying. 


    Packing my house has also been an interesting exercise in noting the way that ADD affects how we live.  ADD doesn't mean that we are less intelligent or that we are more active (Tucker tends to lean toward the hyperactive side of ADD but Michael makes up for that by being extra slow in his own movements.)  ADD manifests itself in my house in organization.  Everything here is either super over-organized, or it's chaos.  My pantry is organized with shelves devoted to different food groups and on those shelves the items are arranged in alphabetical order.  Apple pie filling to Very Cherry fruit cocktail on the fruits shelf.  Atrichoke hearts to Yams on the veggies shelf.  My books (before they all went to live in boxes) were arranged topically by the Library of Congress system and then in alphabetical order by author.  Ditto my music.  The clothes in my closet are sorted by the type of garment and hung in order of color - each section from red to indigo.  (This makes it sound like I have a lot more clothes than I do, all my stuff hangs on a rod about three feet long and includes things like my nighties that I understand "normal" people put in drawers.)


    On the other end of the scale, my kitchen had dishes in three cabinets, pots and pans scattered in two cabinets plus the center island, there were glasses in two cabinets ... it was disorganized chaos.  My bathroom was a similar disaster.  I noticed as I was cleaning out "my" drawer that I had six unopened toothbrushes because I could never find one so I always thought I needed another.  


    When I've talked about living with ADD, I've heard the critique that "we ALL do those kinds of things ..." I've heard the suggestion that ADD is a "manufactured" disorder being pushed by pharmaceutical companies who hope to bolster their bottom line.  I understand where these critiques are coming from, truly I do.  ADD is one of many spectrum disorders that range from manifestations that everyone has in some degree to symptoms severe enough to impair life function.  The thing that I think most "normal" people don't understand is how painful it is to want to focus and have everything scatter just out of reach.  I can't speak to the effectiveness of meds, because I'm one of those people who tries to stay as far away from prescription treatments as possible so I haven't tried them. 


    But if you're going to have some kind of disorder, ADD isn't a bad way to go.  One of the guys who wrote books that many people read about ADD in children has a saying that I love.  "Living with ADD is like trying to leash-train a dragon.  It will drag you around for years, but once you master it, you own all that power and magic and energy for life."


    Because the person with ADD thinks and organizes things differently than most people, we see patterns.  I loved math because math is nothing more than short hand for patterns.  We make the connection between the unconnected dots and we find creative solutions because we don't know how to think inside the box. 


    So I've been thinking about ADD this week.  And I've been packing, and cleaning, and cooking, and checking the kids homework, and reading bedtime stories, and going out for more boxes and packing ... and today, I'm tired.  I know it isn't the weekend yet, but I'm taking today off from packing.  My shoulders hurt and I need the rest.  So if you're looking for me, the best place to start would be my bathtub where I just may be soaking under a mound of bubbles where I'll be focused on resting my body even if my mind won't slow down.

Comments (24)

  • I was a library rat too, always had a stack of books to read. But we got things from that that those who hated to read never picked up.

  • Yay you for taking a day off!

    I think ADD is a very real as opposed to a manufactured disorder.  But many of of the things you mention doing I can relate to.  Or at least I used to, before the LAZY disorder too over for me!

  • ADD also manifests itself in some serious issues with self-discipline. Like taking a Friday off when you know you can take the next two days off because your kids are going to be home and your regiment and rhythm will be shot to hell. ADDers have the greatest habit of putting of for tomorrow what they should have done last week. What most do not realize this that meds help but… discipline is the cure!
     
    And before the rest of you get all bent… I have diagnosed (as an adult) ADHD.
     

    Get out of the tub and pack Terri.  

    sail on... sail on!!!

  • thats interesting bout ADD i never really understood what it was i thought it was the hyper thing...well anyway have great day!! and thanx for the info....

  • My Darling Dread - for the next two days, my kids will be in Louisville with their Dad and I can work my tail off without having to stop and do Momi stuff. 

    I haven't actually made it to the tub yet - I got distracted doing laundry and packing some things in my closet. 

  • Hmmm. I hope your weekend is as interesting as mine will be...

    I'm going to quit smoking, cold turkey. AND reduce caffeine by half or more. Then kids ought to come back with interesting stories.

  • oh how I love this blog (I know I said I wasn't going to read today, but well - I have ADD, so I needed to look at something other than my paper.)

    ADD is a symptom of FMS (if you have ADD, you don't necessarily have ADD - but if you have FMS, you more likely have ADD; make sense?)  I love this blog because I am shaking my head yes to everything you have written. 

    DreadPirate is right, discipline is the cure but it's difficult in a world where everyone wants us to run on their schedule and not ours.  ADD is triggered by many things and for me, it is most likely triggered by my insomnia.  If the whole would functioned at night, I'd be much better off.  It is really difficult to make adjustments to live in a non-ADD world. 

    I am starting Provigal in a few weeks - I'm waiting for the insurance paperwork to go through.  I, like you, have been trying to stay away from prescriptions but my college career is in severe danger because I cannot focus on anything. 

    Jesus, I am starting to cry now because I just re-read your blog and it speaks to me so well.  I would love it if we could email some ideas... some ways of dealing with our over-active brains. 

    much love and many thank yous for writing this entry

  • I think I am ADD, too, which is yet another reason to be thankful for the person I am married to.  She is the organized one;  I mean, incredibly organized.  I'd go nuts without that in my life because I'm all over the place. 

    Go get some sleep, ok?

  • Thank you for writing this.  It is the first time I've heard an adult talk about ADD and how it affects a person.  thanks.

  • Hey!  Somehow I think I got unsubbed from you, but I am back now.  I made a bad click one day, and now, I think it was more than one... and no recourse after the transmit ~ ack!  Anyways, I am recollecting ya'll! You know what?  I think everybody has ADD to some degree... I swear everybody I know suffers from some of the symptoms.  Busy times we live in don't seem to help, but I rest in the comfort of Acts 17:26-28... it's our time to be where we are! (((hugs)))

  • My daughter has ADD too, she also loves reading, writing, anything artistic. I hope she turns out as well as you

  • ooooh....we have something to talk about when you get here!  yay!
    my report cards: disturbs others in class, talks incessantly in class, doesn't work to her potential in class or on homework...etc...  almost flunked out of 8th grade.  the same year we took tests to find out our IQ and our age/grade level potential.  IQ...up there.  Grade level equivalent based on reading and comprehension skills, second semester, 11th grade.  And I had a big ol' fat F in social studies because...
    oh...my...blah...COULD Lewis and Clark have been ANY more boring in the way it was presented?

    And...I usually get to the store and remember my list is on the counter in the kitchen. 

  • Just don't organize the bubbles, ok?

  • at Cheri!  Organized bubbles! 

  • seeeeeeeeeeee, I knew you'd be fine, just like I said in my last comment on your lower moment entry.  Gosh we ADDers are so smart!

    Prayer works wonders also, and you had those going for ya too, but really, you're a resourceful, intelligent and great person from all we can read here.  So it wasn't too insightful for me to say you'd be fine again soon.

    Unlike DP, I hope the bubble bath is the clincher to your full recovery.  heh heh  I do agree the discipline thing counts though and I work on it regularly myself.  I was identifying with your grade cards.  It's funny really, I was always labled (recent comments on Faith's blog about this topic) a pleaser even very early on in school, but still found it like nails on a chalkboard to sit still, quietly, as the teacher droned on about things.  I also read loads during jr high I remember.  Anyway, similarities are uncanny for those of us learning to harness this condition.  Organized beyond reason in some spaces and utter and complete chaos in others.  ugh

    I hope things are going great today and I noticed Tim's comment, so I hope the boys aren't suffering through a nicotine fit visit with dad.   I'm sure they'll have a nice time.

    Hugs and love,

                                 Deb

  • Hey Terri.  Glad to hear you have every symptom I had in grade school.  My diagnosis was always that gradeschool isn't about education.  I hated that place.  If the teacher doesn't know which one matches, why is she asking me?  (never did get that concept.)

    The thing that worries me is that a lot of people--mostly people who have ADD--keep strongly implying that I have ADD.  And perhaps I do.  But I'm happy and well adjusted, dernit!

    I'll refrain from giving you all those quotes about a manufactured problem.   I like the idea of focusing on a harnessed dragon. 

    Of course, everybody knows there's no such thing as dragons.

  • sleeping is great, but sleeping too much can make u lazy

  • You know, I'm getting really really tired of being too busy to write.  I NEED to write. That was from one of your other recent posts, but I just had to share because I soooooo identify!!

    This post strikes a chord with me because I am currently taking the Special-Ed. survey course-- "Exceptional Learners in the Classroom." The textbook devotes an entire chapter to this disorder which is still so nebulously defined that it is not categorized by the federal government for purposes of accommodation under the Individuals with Disabilities Education Act, but in order to provide services to children with it, districts variously classify it as a Learning Disability, or a Physical Disability, or just under "Other."

    Although the term ADD will likely remain in the vernacular, the APA ceased to recognize it in the DSM-IV. They now recognize ADHD as a singular disorder with three different "types." Those without the hyperactivity-- what we usually call ADD-- are officially diagnosed as "ADHD, Primarily Inattentive Type." You probably know all this already, but I find it interesting... just because I was a Psych minor as an undergrad, long before finally deciding to get my teaching license, as I'm doing now...

    I do believe this is a real disorder, although I think that if handled correctly it can have its benefits (just as people with bipolar disorder sometimes don't want to be medicated because they like all that they get done during the manic episodes). My oldest stepdaughter with diagnosed with ADD and has been taking a low dose of Adderall everyday since. Her biggest problem in school is that she'll do the homework but then doesn't turn it in. We are at a loss, because her grades are awful due to this fact, but it's not like we can go to school with her everyday and make her turn in her work. Her teachers say that when they ask her for it, she just laughs. We are going to make her repeat 6th grade-- I hate trying to modify behavior through negative reinforcement but we don't see what else will wake her up.

    Very intriguing, Ter. I hope to read more.

  • Dear Terri,
    Thank you so much for this blog about ADD. Suddenly...suddenly, my eyes have been opened. All throughout my childhood, I could never understand the comments I got from family, teachers, et al. about my "lack of organisation" "lack of motivation" "laziness" "tries hard, but..." "could-do-better-if-she-tried" Maybe I should have had more faith in myself as regards my intelligence - after all I taught myself to read at age three - but somehow, the opinions of the adults around me warped my vision. And now I see why my adult life is such a shambles, too. That procrastination thing, for instance.
    Lots to think about now...
    Go well, Terri.

    Mutzi.

  • It's so cool how you and the kids cover for each other.

    I'm waaaay late to this, but I hope you had more than one good bubbly soak since you wrote it!!

  • One of the ways ADD manifests itself in me is in my writing, or lack of it. My brain won't stop thinking, but rather than being able to organize my ideas, like you do the clothes in your closet, they remain in chaos like your pots and pans. I'm left to wonder why I'd be given such a desire to write, while most of the time I seem to lack the organizational means. On top of that, my brain's filing system for words is hopeless. I lose them all the time, just when I need them most.

  • This blog is so amazing for me.  I have been going to a therapist now for about 3 months.. She told me I have ADD.  It explains so much of my child and adulthood.  I am learning to deal and reconize things.  IT is good for Thad because it is helping him to understand me more. He is so organize and is helping me to do better.  List are very important. I thank you for being brave to talk about it.  I was too ashamed to put on xanga that I have it. 

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